After three weeks, I am finally going home! My labs remain stable, my fluid volume is a little higher than we'd like, but not so bad that would keep me in the hospital. It will be nice to take a nice, hot shower, and go to dinner and theater with my sweetie for Friday & Saturday date nights.
I have two baby quilts to put the finishing touches on. I want to go buy my flowers and get my window boxes planted and I want to enjoy my house that I love so much.
In the bad news department: I'm too fragile to travel to Chicago to welcome Spike into this wonderful, magical world. I am sending Joe for a long weekend next week, and my son Alex will spend the weekend with me making sure I eat and take care of myself. I'll see Spike after my transplant and I'm sure the new mom & dad will be very understanding with my absence.
In the transplant department: I fully expect to be listed on Thursday, May 22. From a heart perspective, I will have a high lung allocation score: I'm sicker than many on the list (only 13 currently on the list at the University) and less likely to survive waiting for lungs. Dr. C. is talking about days or weeks before the transplant comes to fruition.
I've completed all parts of the evaluation. I met my social worker today. One of the transplant surgeons dropped a consent off to utilize Lung In a Box when the time comes. I have to take a class about transplant today. Next week, I will have a special low-dose contrast angiogram to make sure there are no insidious coronary blockages to get in the way of a healthy heart during transplant. We'll address any issues next week. Things are happening. And they are happening quickly. I had imagined waiting and waiting for months as my poor heart continued to fail; but it looks like thats not in the cards for me.
So looking forward to being home!
Homeward Bound
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